Dementia Resources
Dementia | Alzheimer's | Cognitive Decline
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Caregiving for Aging Loved Ones
Caregiving for Aging Loved Ones
CaringKind NYC - Resources for Caregivers for someone with Dementia. * See above section on Dementia for more resources *
For Help with Eldercare and Caregiving
For Help with Eldercare and Caregiving
Eldercare Locator - Free referrals for any eldercare needs
www.eldercare.gov | 800-677-1116
National Alliance for Caregiving
AAHCP American Academy of Home Care Physicians - Free referrals to eldercare doctors
www.aahcp.org | 410-676-7966
National Academy of Elder Law Attorneys - Free referrals to elder law attorneys
www.naela.com | 520-881-4005
Senior service locator for NYC (senior centers, meals on wheels, etc.) - Link
Invisible Hands Deliver - NYC Grocery Delivery for Elderly & Disabled - Link
County Offices for the Aging locator (scroll down for filters) - Link
NY Connects (Statewide social services finder) - Link
US Administration on Aging Eldercare Locator: Link | 1-800-677-1116
"Caregiver's Corner" from The Fisher Center for Alzheimer's Research Foundation
Readings & Issues
Readings & Issues
Mace, N. & Rabins, P. (2017). The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss, John Hopkins University Press. An easy to read resource for those providing care to family or friends with dementia.
ADHD in Older Adults: Distinct Diagnostic and Treatment Considerations, ADDitude Magazine (Oct. 11, 2023).
Signs of Adult ADHD? Or Old Age? ADDitude Magazine (Apr. 15, 2022).
The Psychological Impact of COVID-19 on Older Adults Living in the Community - Link
Burnout
Dementia Support: “Coronavirus (COVID-19): Tips for Dementia Caregivers,” from the Alzheimer's Association - Link
Community
Community
The 92nd Street Y - Link
** Note: Some of these resources were provided by Carolyn McIntyre, LCSW
Below are selected resources from the main Grief resources page.
What are the seven stages of grief? Understanding grief after loss on ThriveWorks (March 23, 2023).
The Grief Channel -- Link
The Loving Kindness Meditation -- on Vimeo
Techniques (Tapping, Guided Imagery, Breathwork, EMDR, Mindfulness Meditations, Self-Soothing)
The APA's description of Prolonged Grief Disorder, including a video explaining why it was added to the DSM.
Grief & Loss During COVID-19
Grief & Loss During COVID-19
NY State Psychological Association's Remarks
The Psychological Impact of COVID-19 on Older Adults Living in the Community - Link
Readings
Readings
Losing a Loved One Isn’t the Only Reason to Go to Grief Counseling - Link
What Ambiguous Loss Is and How To Deal With It: A psychologist shares ways to cope with a lack of closure, from The Cleveland Clinic (Feb. 27, 2022). - Link
"Dreams of Departed Loved Ones ...And their emotional impact on people in times of change," by Layne Dalfen on the topic of Sleep & Understanding Dreams. Psychology Today (Jan. 20, 2023). - Link
Grief & Loss: Coping with Losing a Pet from Helpguide.org | The Humane Society | Join an AKC Support Group
Books
Books
Kubler- Ross, E. Kessler, D., (2014). On grief and grieving: Finding the meaning of grief through the five stages of loss: Scribner, New York.
Support Groups & Local NYC Resources
Support Groups & Local NYC Resources
A Caring Hand: Resources and support for bereaved families and children
212-229-CARE (2273) | Website| info@acaringhand.org
Jewish Board Bereavement Services: Bereavement support for individuals and families
888-523-2769 | src@jbfcs.org | Website
Visiting Nurse Service of New York: Hospice and palliative care and support
212-609-1900 | www.vnsny.org
The Center for Complicated Grief: Information on complicated grief - Website
MJHS Hospice: hospice, palliative care, rehabilitation and nursing for adults and children - Website
Compassionate Friends (Manhattan): support for families after the death of a child - Website
Compassionate Friends (Brooklyn): support for families after the death of a child - Website
Through the AKC | ASPCA | AKC Faceboook Pet Loss Support Group
Bideawee Rescue - The Bideawee Pet Loss Support program is a free service that convenes virtually on Zoom. Each support group is attended by individuals that have recently experienced the loss of a pet. The groups are facilitated by one of Bideawee’s qualified volunteers who specialize in animal bereavement or are Licensed Clinical Social Workers (LCSW). Support Group Qs: 866-262-8133
ASPCA - End of Life Care |
ASPCA National Pet Loss Hotline: 1-877-474-3310
List of National Hotlines - Link
AMC (Animal Medical Center) Virtual Support Groups:
Support Groups | Pet Loss Resources | Email
Judith Harbour, LCSW, Social Worker: Email | 212-329-8521
Booklets: Supporting Your Child | Supporting your Partner | Supporting your animal
The Usdan Institute for Animal Health Education at the AMC - a leading provider of pet health information - go to their website for answers on pet health
If you or someone you know are experiencing suicidal thoughts please call 911 or the National Suicide Prevention Hotline at 1-800-273-8255
Dementia, Alzheimers and Cognitive Decline
Dementia, Alzheimers and Cognitive Decline
Articles & Psychoeducation
Articles & Psychoeducation
Preserving Your Memory - Magazine from the Alzheimer's Association
Just Forgetful, or is it Dementia? (May 17, 2011) from the Alzheimer's Association. Accessed 01/30/23 from https://bit.ly/3HhOaw0.
The 7 Clinical Stages of Alzheimer's from The Alzhiemers Association. Accessed 01/30/23.
The Best Medical Alert Systems Chosen by Our Testers, from HelpGuide.org (Updated: February 05, 2024). After testing 23 devices, we hand-picked the four top medical alert systems. Learn what features stood out and what disappointed us about each brand.
Signs of Adult ADHD? Or Old Age? ADDitude Magazine (Apr. 15, 2022).
A Practical Guide of Psychosocial Interventions and Dementia - A comprehensive practical guide for non-pharmacological ways to support people living with Dementia from the The Fondation Médéric Alzheimer (June 2021), accessed from IAHAIO Aug. 29, 2023.
It includes benefits of animal-assisted interventions for cognitive, emotional, psychological and physical well-being.
Practical Guide | Practical Sheet | Six Questions
AlzAuthors - a website with blog posts, resources, a podcast, helpful gadgets and more. It has a very robust resources page that covers diverse types of dementia, including General Dementia, Early/Younger Onset, Fronto-Temporal Dementia/ Pick's Disease, Alzheimer's, Lewy Body, Vascular Dementia, Parkinson's Disease, Mild Cognitive Impairment (MCI)
“Untangling Alzheimer’s and Dementia: An AlzAuthors Podcast” | Resources for Alzheimer Caregivers | Alzheimer Caregiver Guides | Instagram
Videos:
Videos:
About Alz.org. What is Alzheimer's disease? from Youtube. Last accessed 01/30/23
Community, Programs, Support
Community, Programs, Support
National
National
The Fisher Center for Alzheimer's Research Foundation
1-800-ALZINFO (259-4636) | 212-915-1328 | info@alzinfo.org
Resource Locator from the Fisher Center for Alzheimer's Research Foundation
"Caregiver's Corner" from The Fisher Center for Alzheimer's Research Foundation
Preserving Your Memory Magazine from the Alzheimer's Association
National & New York City
National & New York City
The 92nd Street Y - Link
The Alzheimer's Foundation of America - Phone: 866-232-8484 | E-mail: info@alzfdn.org
CaringKind NYC - the former New York Chapter of the Alzheimer's Association. Dedicated specifically to supporting caregivers and family members. Helpline: Helpline@caringkindnyc.org | 646-744-2900
Early Stage Resources for those with dementia
Culture Partners throughout New York City's 5 boroughs and virtual, including:
Arts & Minds - At El Museo del Barrio and The Metropolitan Museum of Art (en español); The New-York Historical Society, Bard Graduate Center, Museum of the City of New York, and Harlem Pop-Ups with The Studio Museum in Harlem.
Memory Arts Café - Visit website Phone: (718-499-7701)
A series of free art events for people living with Alzheimer's disease, their caregivers and the general public and is co-produced by New York Memory Center and the Alzheimer's Poetry Project.
The Unforgettables Chorus - Visit website | unforgettables.chorus@gmail.com
The Unforgettables is a chorus for people living with dementia and their family member caregivers. The chorus rehearses and performs in concerts several times a year.
Music & Memory: A non-profit organization that "helps individuals with a wide range of cognitive and physical conditions to engage with the world, ease pain, and reclaim their humanity through the use of personalized music. By providing access and education, and by creating a network of Music & Memory certified organizations, we aim to make the therapeutic use of personalized music a standard of care throughout the health care industry."
Community
Community
A participatory event that includes discussions, handling sessions, art making, and other multi-sensory activities.
Museum of Modern Art's "Meet Me at MoMA" Visit website | Virtual Program
This program provides a forum for dialogue for people with dementia and their care partners through looking at art.
The Brooklyn Botanical Gardens
For Caregivers
For Caregivers
See above for a range of resources from Caring Kind, find out about Respite Care and Geriatric Care Managers.
AlzAuthors.com - Caregiver Guides & Blogs - provides a range of resources including articles, guides, support groups, books, podcasts, videos, gadgets and tools for the home and more - Caregiver Guides for Dementia and self
Teepa Snow has a plethora of videos, trainings and tips for caring for people throughout the stages of dementia. She's founded the Positive Approach to Care.
CogniCare: A personalised digital companion for caregivers of people with dementia
Alz You Need - an online platform to help help caregivers find technology to empower them and their loved one to live happier, healthier lives.
Samada: End of Life planning, resources and support
Podcasts:
Podcasts:
The Grief Outloud podcast episode "Capital L Love - Caring For A Parent With Alzheimer's (Brianne Grebil)
Untangling Alzheimer’s and Dementia from AlzAuthors.com
Books and Movies
Books and Movies
Mace, N. & Rabins, P. (2017). The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss. John Hopkins University Press. - Amazon Link
Still Alice - Book and Movie starring Julianne Moore about a linguistics professor diagnosed with early-onset Alzheimers at the age of 50. Film | Book
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