Dementia Resources

Articles & Psychoeducation

• Preserving Your Memory - Magazine from the Alzheimer's Association

• Just Forgetful, or is it Dementia? (May 17, 2011) from the Alzheimer's Association. Accessed 01/30/23 from https://bit.ly/3HhOaw0.  

• The 7 Clinical Stages of Alzheimer's from The Alzhiemers Association. Accessed 01/30/23.

• The Best Medical Alert Systems Chosen by Our Testers, from HelpGuide.org (Updated: February 05, 2024). After testing 23 devices, we hand-picked the four top medical alert systems. Learn what features stood out and what disappointed us about each brand.

• Signs of Adult ADHD? Or Old Age? ADDitude Magazine (Apr. 15, 2022).

• A Practical Guide of Psychosocial Interventions and Dementia - A comprehensive practical guide for non-pharmacological ways to support people living with Dementia from the The Fondation Médéric Alzheimer (June 2021), accessed from IAHAIO Aug. 29, 2023. 

It includes benefits of animal-assisted interventions for cognitive, emotional, psychological and physical well-being.   

Practical Guide | Practical Sheet | Six Questions

• AlzAuthors - a website with blog posts, resources, a podcast, helpful gadgets and more. It has a very robust resources page that covers diverse types of dementia, including General Dementia, Early/Younger Onset, Fronto-Temporal Dementia/ Pick's Disease, Alzheimer's, Lewy Body, Vascular Dementia, Parkinson's Disease, Mild Cognitive Impairment (MCI)

“Untangling Alzheimer’s and Dementia: An AlzAuthors Podcast” | Resources for Alzheimer Caregivers | Alzheimer Caregiver Guides  | Instagram

Videos:

• About Alz.org. What is Alzheimer's disease? from Youtube. Last accessed 01/30/23

Community, Programs, Support

National

• The Fisher Center for Alzheimer's Research Foundation

1-800-ALZINFO (259-4636) | 212-915-1328 | info@alzinfo.org

• • • Resource Locator from the Fisher Center for Alzheimer's Research Foundation

    • "Caregiver's Corner" from The Fisher Center for Alzheimer's Research Foundation

    • Preserving Your Memory Magazine from the Alzheimer's Association

National & New York City

• The 92nd Street Y - Link

  • • Himan Brown 60+ Program: 212.699.7261 | email

    • 92NY Program for Cognitive Strength and Ability - Programming for patrons with mild to moderate cognitive impairment. Also offers programming for family members & caregivers - Link

• NewYork-Presbyterian - Alzheimer's Care

• The Alzheimer's Association, NYC

• The Alzheimer's Foundation of America - Phone: 866-232-8484 |  E-mail: info@alzfdn.org

  • AFA’s National Memory Screening Program -- free and confidential

  • Caregiver Support Groups

  • Facts and Caregiver tips - Visit Website

• CaringKind NYC - the former New York Chapter of the Alzheimer's Association. Dedicated specifically to supporting caregivers and family members. Helpline: Helpline@caringkindnyc.org | 646-744-2900

  • • Early Stage Resources for those with dementia

    • Connect 2 Culture Programming -- Calendar of Events

Culture Partners throughout New York City's 5 boroughs and virtual, including:

• • • • • AileyDance Workshops  -  Virtual Program

        • Arts & Minds - At El Museo del Barrio and The Metropolitan Museum of Art (en español); The New-York Historical Society, Bard Graduate Center, Museum of the City of New York, and Harlem Pop-Ups with The Studio Museum in Harlem.

        • Memory Arts Café - Visit website Phone:  (718-499-7701)

A series of free art events for people living with Alzheimer's disease, their caregivers and the general public and is co-produced by New York Memory Center and the Alzheimer's Poetry Project. 

• The Unforgettables Chorus - Visit website  |  unforgettables.chorus@gmail.com

The Unforgettables is a chorus for people living with dementia and their family member caregivers. The chorus rehearses and performs in concerts several times a year. 

• The NY Memory Center

• Music & Memory: A non-profit organization that "helps individuals with a wide range of cognitive and physical conditions to engage with the world, ease pain, and reclaim their humanity through the use of personalized music. By providing access and education, and by creating a network of Music & Memory certified organizations, we aim to make the therapeutic use of personalized music a standard of care throughout the health care industry."

• The Alzheimer's Poetry Project 

Community

• • • • • The Metropolitan Museum of Art, The Met Fifth Avenue & The Met Cloisters

A participatory event that includes discussions, handling sessions, art making, and other multi-sensory activities.

• • • • • Museum of Modern Art's "Meet Me at MoMA"   Visit website | Virtual Program

This program provides a forum for dialogue for people with dementia and their care partners through looking at art.

• The Brooklyn Botanical Gardens

For Caregivers

• See above for a range of resources from Caring Kind, find out about Respite Care and Geriatric Care Managers. 

• AlzAuthors.com - Caregiver Guides & Blogs - provides a range of resources including articles, guides, support groups, books, podcasts, videos, gadgets and tools for the home and more - Caregiver Guides for Dementia and self

• Teepa Snow has a plethora of videos, trainings and tips for caring for people throughout the stages of dementia. She's founded the Positive Approach to Care. 

  • • YouTube Channel 

    • Phrases to Learn for Caregivers| Teepa Snow Discusses the "Ten Early Signs of Dementia"

• All-Alzheimer’s: A Resource for Caregivers

• AlzheimersCaregiver.net

• CogniCare: A personalised digital companion for caregivers of people with dementia

• Alz You Need - an online platform to help help caregivers find technology to empower them and their loved one to live happier, healthier lives. 

• Samada: End of Life planning, resources and support

Podcasts:

• The Grief Outloud podcast episode "Capital L Love - Caring For A Parent With Alzheimer's (Brianne Grebil)

• Untangling Alzheimer’s and Dementia from AlzAuthors.com 

Books and Movies

• Mace, N. & Rabins, P. (2017). The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss. John Hopkins University Press. - Amazon Link

• Still Alice - Book and Movie starring Julianne Moore about a linguistics professor diagnosed with early-onset Alzheimers at the age of 50. Film | Book